Star-Studded Rock4EB! Concert Raises Over $1 Million for 'Butterfly' Skin Disease Epidermolysis Bullosa

Pink, Courteney Cox, Kaley Cuoco, Brad Pitt, Judd Apatow and more stars supported the fundraiser for epidermolysis bullosa

This year’s star-studded Rock4EB! concert for epidermolysis bullosa was a success.

On September 21, the Epidermolysis Bullosa Medical Research Foundation hosted its 7th annual event in Malibu, Calif., raising over $1 million in one night for research and to find a cure for the rare skin condition. The foundation is the only all volunteer, nonprofit funder of research for EB.

This year, several celebrities supported the cause, including Pink — who was the special performer at the concert — Courteney Cox, Kaley Cuoco, Tom Pelphrey, Elizabeth Olsen, Brad Pitt, Ines de Ramon, Catherine Bell, Judd Apatow, Kim Basinger, Ed O'Neill and more.

Andrea Pett-Joseph and Paul Joseph launched the Los Angeles chapter of the EBMRF in 2005, and took over day-to-day operations of the foundation later that year. Their involvement began after their son Brandon, now 20, was born with epidermolysis bullosa.

EB — often called the "butterfly disease" because the condition leaves the skin as fragile as a butterfly’s wings — is a genetic disorder that causes painful blisters on the skin and internal organs from even the slightest touch or friction. The result is disfiguring scars and often, early death from skin cancer.

Related: 20-Year-Old with 'Butterfly' Skin Disease Is Striving for Independence: 'You Just Gotta Power Through' (Exclusive)

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Nearly 20 years later, Andrea and Paul say the EBMRF is most recognized for their Rock4EB! concert. During the event, several stars stressed how important the foundation was.

“This is very near and dear to my heart,” Cox told PEOPLE. “This event is so important because we need to raise awareness. We need to continue to raise funds. This is such a behind-the-scenes charity no one understands. It needs to be talked about.”

“I've kind of been part of this for a very, very, very long time, and I've seen what it can do,” Cuoco said of the fundraiser. “I just like to be able to be here and be as supportive as I can. I love that family, and I think this is a terrible, terrible disease, and it should not be real.”

“It’s a really important charity, and they're making a lot of progress,” added Apatow, who hosted the event. “So I'm always happy to help when called.”

Related: Parents' Race to Fund Cure for Teen Son's Painful Skin Disease: 'Time Is the One Thing None of Us Can Get Back'

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Ahead of the annual fundraiser, Andrea told PEOPLE that she can’t believe it’s been two decades working with the foundation, assuring their work is far from over.

“Sometimes you run a foundation and you're in it for the cause, but you're brought to the table by different reasons. And for us, obviously it's very personal,” she said. “So we're here 'till we figure it out. And certainly the progress that we've made, we're really happy about.”

“We always joke with all the researchers and say, ‘We'd love nothing more than for you guys to put us out of business.’” Paul added with a laugh. “But yeah, we're thrilled.”

“We are never going to have enough dollars to fund something from inception to actual public use,” he continued. “But the idea that we can hand off the baton and get other pharmaceutical companies involved and other foundations, and more research, that's really the multiplier effect where we felt we added some value.”

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