"I Was Also Diagnosed. It F*cking Sucks": Millions Of People Are Applauding Lili Reinhart For Opening Up About Her Newly Diagnosed Chronic Illness

In addition to being a great actor, Lili Reinhart is also an advocate for mental health and body image.

Person in elegant, tailored black suit with high notched lapels, stands in front of lush green plants. Hair is styled up
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She is often praised for her vulnerability in discussing her personal struggle with depression, and just last year, she opened up about being diagnosed with alopecia.

Text overlaid on tree background with messages about fighting depression, self-care, and the importance of surrounding oneself with positivity
@lilireinhart / Instagram: @lilireinhart

Now, Lili has opened up on her Instagram and in an interview with Self magazine about additional health challenges she has been going through.

Person in a German hospital room takes a selfie. Text:
Person in a German hospital room takes a selfie. Text:
Text exchange about someone experiencing hair loss when running hands through their hair at a garbage can
Text exchange about someone experiencing hair loss when running hands through their hair at a garbage can

@lilireinhart / instagram.com

In the caption of her post, Lili said, "Being diagnosed with interstitial cystitis while simultaneously searching for answers about a mysterious autoimmunity/inflammatory disease made 2024 the hardest year of my life."

Person lying on a medical exam table, looking at the camera, with hand on stomach. Medical equipment is visible in the background
@lilireinhart / instagram.com

"I was inspired to talk about this after my grandmother was ignored by doctors for months when exhibiting clear symptoms of cancer — and it was only after her own strength and advocation for herself that she was given a blood test that diagnosed her. And by then, the cancer had spread."

Summary of a text message discussing ongoing health struggles, lack of mobility, multiple doctor visits, and a White House visit
@lilireinhart / instagram.com

"The most important thing I have taken away from this experience is the absolute need to advocate for your own health. Do not let a doctor gaslight you or diminish your pain. I hope the men & women out there struggling to find answers feel even the slightest bit seen by my experience. ❤️‍🩹," she concluded in her post.

Person taking a selfie in a medical exam room, seated on an examination table, wearing a striped long coat and a paper gown, with eyes closed
Person taking a selfie in a medical exam room, seated on an examination table, wearing a striped long coat and a paper gown, with eyes closed
A dog named Milo lies on a person's lap on a plane. Text above expresses discomfort due to a bladder flare during a flight, lasting over 4 months
A dog named Milo lies on a person's lap on a plane. Text above expresses discomfort due to a bladder flare during a flight, lasting over 4 months

@lilireinhart / instagram.com

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Interstitial cystitis is also known as “painful bladder syndrome.” Despite it being relatively common, affecting up to 7.9 million people in the US, it is often misunderstood and dismissed.

Text conversation discussing interstitial cystitis, autoimmune disorder diagnosis challenges, and upcoming specialist appointment on Friday
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Dr. Emily C. Von Bargen, a urogynecologist and medical adviser to vaginal health brand Cheeky Bonsai, explained to BuzzFeed that symptoms can include pain, pressure, and frequent urination. The sensation may mimic a urinary tract infection but persists despite treatment, with no specific infection detected.

Person taking a selfie while lying on a hospital bed, with a blue blanket covering them. They look alert and relaxed
@lilireinhart / instagram.com

And because the symptoms can be so similar to a UTI, people can often be misdiagnosed — you can read about one woman's yearlong journey trying to find a diagnosis here.

Person in a medical setting seated on a bed, wearing a mask and t-shirt. IV lines are visible in their arm, suggesting a medical procedure or treatment
Person in a medical setting seated on a bed, wearing a mask and t-shirt. IV lines are visible in their arm, suggesting a medical procedure or treatment
Person in casual wear sitting, with medical equipment nearby, appears relaxed and smiling slightly at the camera
Person in casual wear sitting, with medical equipment nearby, appears relaxed and smiling slightly at the camera

@lilireinhart / instagram.com

Immediately, people who are also fighting chronic illnesses came forward in support.

Text post by amberrae619 about overcoming chronic illness and mental health challenges since 2001, ending with "we are absolute WARRIORS" and a flexed arm emoji
@lilireinhart / instagram.com

They also openly shared their own experiences with interstitial cystitis.

Text from a social media post about being diagnosed with interstitial cystitis in 2020 and expressing frustration
@lilireinhart / instagram.com

Everyone showed up with compassion and praise for Lili who — once again — has used her platform to spread awareness and create unity.

Social media post thanking someone for their openness and expressing support and pride for them
@lilireinhart / instagram.com

You can read Lili's full interview with Self magazine here, and you can find more information about interstitial cystitis here.

Person smiling and giving a thumbs-up in a medical setting, wearing casual attire with a sweatshirt featuring a dog illustration
@lilireinhart / instagram.com