Soapbox

Organ Donation crisis - a new plan

Dec 03 12:10pm

Double lung recipient Imogen Oulton on Sunrise (03/12/07)
Why does Australia have such a low rate of organ transplant operations?

In what equates to a national scandal, nearly 6 million Aussies have registered to donate their organs but only
700 transplants are taking place a year.

Kochie is part of the ShareLife group, which has been trying to work out how Australia has got into such a position.

ShareLife now says it has isolated the problems, and come up with a solution.

Marvin Weinman, the group’s chairman, and Allan Glanville, a top transplant surgeon from St Vincents Hospital, appeared on
Sunrise to discuss the issue.

Nine year old Imogen Oulton, her mum Jacqui and dad John came on the show in August, pleading for a donor. Following the show,
Sunrise received offers of a donation from viewers who watched the episode.

 

The Issue

Australians want to help, but people are suffering and dying needlessly waiting for a transplant. Our systems are failing us.

 

The Problem

Registered donors have no say when they die
No central authority for transplants
Conflict of interest with doctors
Donor register often ignored

The Solution - We can do better. No Australian should die needlessly. Australia needs a new approach.

One national organisation for the process
Specialist donor-coordinating doctors
Reimburse hospitals for costs
Training and awareness within hospitals
Consistent public education


Organ recipient Imogen and her family on Sunrise (03/12/07)
Imogen's story
In March, Imogen had been sent home from school in Brisbane with a headache. Within a fortnight she was admitted to hospital with pneumonia, which lead her to develop an acute respiratory distress syndrome which further damaged her lungs.

 

The Facts

- Nearly 6 million Australians have registered to donate – which is one of the highest rates in the world
- We have world-leading success rates (over 90%)
- BUT, there were only 202 deceased donors throughout all of Australia in 2006
- In 1989 there were 231 organ donors
- Therefore only 698 people benefited in 2006 from this life-saving therapy
- There are over 1800 people on the official waiting list.
- Over 25% of those on the official list die waiting
- In many other western countries their citizens are at least twice as likely to receive an organ transplant than here

 

Put on the waiting list for a transplant in May, Imogen's family was told they could wait up to a year for a donor.

They were given three options –
1) a heart lung transplant from a child of similar age and size;
2) lungs from a child of similar age and size;
3) adult lungs cut down


Doctors were eager to save Imogen form the frosty and dangerous onset of winter. In the end, she received cut-down adult lungs because there weren't any child donors available.

Sunrise are committed to saving lives and we will be putting a scoreboard up each month on the number of transplants and the progress on the solutions.

More info:
www.imogen.org.au - Imogen's website
ShareLife Australia
Australian Organ Donor Register
Preston James Research Fund  Download PDF


A sample of comments from Soapbox

From bradtaylor75

I am recognized as one of the World's longest surviving heart & double lung recipients. Ever since my lifesaving three way "Domino" transplant nearly 18 years ago I've tried at every occassion to raise awareness & publicity to help promote organ donation. Now, thanks to Kochie & the Sunrise team taking on this issue, I believe many more Australians & my Cystic Fibrosis friends will have a better chance to receive a transplant like I did all those years ago. Thanks Sunrise.

From Frank, Qld


Why doesnt the goverment offer the cost or money toward a funeral  (say $7000) for anyone who is a organ donor whether  there organs are used or not. Myself i would feel a lot better knowing my
family would not have to suffer the expence if i died plus the fact of helping others.  It may be an expensive offer but surely with the cost of anguish to familys waiting,drugs and medical machinery to keep recipents alive it would balance out, who knows after a while we hopefully would have a abundance of organs to offer to others out side of Australia, tell them to come over here and jump on a waiting list they would have to spend money while  they are here waiting, thats got
to be good for the economy.

From Mardi, Qld

I have Cystic Fibrosis. I'm 31yrs old,have a 3 yr old son & have been on the transplant waiting list for 14 months waiting for a heart & double lungs. I'd love for donor registration to become mandatory. Maybe of the polies suddenly became sick & needed a transplant-not knowing if they would see their children grow up-they'd do something about it?????

From Holly, Tas

Why aren't people asked to fill out the organ donation form when they get their driver license? You are asked if you want to be an organ donor when you fill in the paper work to get your license but this does not register you for organ donation. I thought ticking a few boxes as I got my license registered me but a few years later I found out otherwise. Please register here.

 

55 Comments Report Abuse
1. rachelle.corcoran - Nov 14 07:24am
I agree with Holly, Tas, i assumed that when you tick the box on your licence application that made you an organ donor. Hand out the forms at the RTA when licenses are done, or have them floating around on the desks at Doctors surgeries waiting rooms, Medicare offices etc. I have never seen one yet.
A good incentive would be, if you filled out an organ donor registration form when you apply for your licence, you get your licence at half price, (or even free), this would lift the percentage of
2. ehflow75 - Nov 14 07:25am
From Fiona, Vic
I have always wanted to be an organ donor and my husband and family know my feelings on the issue, but my biggest concern about this is wondering if there is a cost to my family for the proceedures. I feel it would be hard enough dealing with there loss of me, but I would be devistated to know that they had a bill to fullfill my wishes. Could you explain the costs? Fiona
3. z_edwards - Nov 14 07:30am
my partner suggests if the government can give $4000 for a child to be born and then sometimes neglected why cant they give a one off payment to organ doners?
4. evilhomer3334 - Nov 14 08:09am
I totally agree with z_edwards, however I would go even further, if the organ donation was due to a death funeral payment's or part payment would help out low income family's. The other thing that bother's me is what if a member of your own family needs a living donation later and you can't because you have already given to a complete stranger, could you jump the list. At this stage I have told my family not to donate my organs unless it's for close family only.
5. xja63 - Nov 14 08:32am
i have been on dsp for 6 years i have ckd im 44 years my doctor has not put me on a transplant list and will not tell me when he will. i was a pro fisherman for 26 years i want to go back to sea. i still 20 years work left in me.
6. bevrassy - Nov 14 08:42am
Fiona we donated my sisters organs last year and there is no cost to your family for any of the procedures
7. jolarc13 - Nov 14 08:53am
I agree with the comments already left. If the government can pay people to have babies then surely they can help support families making one of the most important decisions in their lives at the most devastating time in their lives. I had a kidney transplant 21 years ago at the age of 22, after spending 4 years on dialysis, I have gone on to live a healthy productive life, I have been married for 14 years and have two wonderful children who without the gift that I was given would not be here to
8. seaproof - Nov 14 09:08am
When my husband died at age 81 (he was on the organ donor list) I offered his organs to the hospital but nobody took any notice so I presume once one reaches a certain age, ones organs are no good?
Nicole
9. pj1s01 - Nov 14 09:31am
Are gay people allowed to donate organs as I know we are not allowed to donate blood?
10. samoner - Nov 14 09:47am
I think it is important for people to realise that donating organs is a very difficult process and not just anyone is eligible to donate, a person must be declared brain dead before they are eligible donors, and even then the time constraints and compatibility reflects the amount of transplants completed in Australia each year. This is why it is important for all of us who wish to register as organ donors tell our families of our intent to donate, as they ultimately make the decision if the time
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